Dynamic Ability Blog

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  • 21 Sep 2018 2:56 PM | Lora Bigcraft (Administrator)

    There are many words/emotions that people can feel after receiving new information or statistics. Emotions such as surprise, disgust, doubt, pride, anger, shock, fear, happiness, or awe are a few emotions we have all encountered … Often, those responses and words depend on the background of a person and their base thoughts, perceptions, knowledge, biases whether known or unknown, personal experience(s), or any number of other factors that can influence our response upon being presented with new statistics or information. Also, how this new info or stat is presented to us along with our interest level may impact our response. Clearly, there are numerous factors I just mentioned and probably many others not mentioned that help sculpt our decisions once presented with something new. 

             I brought all of that up, spoiler alert, because I want to share some information and statistics with you. Hopefully by bringing you aware of all those underlying factors you will take this in with an open mind and take a moment to process what I give you. As a person with a disability (I am a C-6 Quadriplegic of over 13 years), I’m an easy target to somebody that wants to commit a crime of some sort. Plain and simple, people with disabilities present opportunity to a predator. 

    ·       Bureau of Justice Statistics did an analysis from 2009-2015 of crimes against persons with disabilities, rate of violent victimization towards persons with disabilities were at least twice the age-adjusted rate for persons without disabilities

    https://www.npr.org/2018/01/08/570224090/the-sexual-assault-epidemic-no-one-talks-about

    ·       DOJ stats only count for ages 12+ and do not include institutions or the nearly 373,000 in group homes

    ·       People with intellectual disabilities are sexually assaulted at much higher numbers — "more than seven times higher than the rate for persons with no disabilities."

    ·       https://www.bjs.gov/content/pub/pdf/capd0915st_sum.pdf

    Please be careful and aware of your surroundings along with looking out for those you love.  Conduct background checks along with use of references when possible, especially for an employee working with a person with multiple disabilities. People with multiple disabilities are at even a greater risk than somebody with one disability. If you are worried or concerned try and notice if there are signs of abuse or personal items lost. Victims may feel too ashamed or embarrassed to come forward initially. Voice your concerns early and to the appropriate personnel/authorities. With support, understanding, and simple belief in the person about their experiences, we will be able to move forward and put an end to these disgraceful acts against people with disabilities.


  • 06 Aug 2018 3:23 PM | Lora Bigcraft (Administrator)

    Written by: Holly Peterson

     

    This has been a very big year for the Peterson Family.  My daughter Sally graduated from Lyle Torrant Center at age 26.  Many parents like myself feel that “the bottom falls out” of our adult child’s and our lives. All of the hours of time that were filled by school need to be filled with  activity!  That doesn't mean the activity of sitting in front of a television or a video game ..to us, it means QUALITY and MEANINGFUL activity! 

    My husband Jeff and I look at each other and ask…”What will it look like...where will she go, who will do it with her”? We are both heavily involved in local issues for individuals with disabilities so we have made it our jobs to be informed...and for me, well it actually IS my job (to be informed)!  I work for disAbility Connections and contract to the Intermediate School District as the Resource Coordinator.

    Because we both work, we have limited “staff hours” and need to make the most of them.  We don't have the time to invent things...so we need to rely on what is currently happening in our community and plug into those things.   We take Sally’s interests, her strengths, physical abilities and needs into account, then add the important things to our family, like faith, volunteering and giving back to the community.  Our family motto is…”If it is to be (it might be) up to me!” 

    I have gathered a list of community activities over the years that I share with other families and today I am using it like my menu.  I am checking off the things we will participate in and add others  (that’s the “up to me” part).   I will set it up like a weekly calendar. It doesn't have to be stuck like glue, but if it is on paper it is more important to us, to Sally and to helpers in making sure we attempt to meet the goals we feel are important to the Meaningful life we hope to foster.

    Monday:

    AM—David’s Promise at First Church of the Nazarene

    Home for lunch

    Laundry Day (Sally assist with sorting and folding -hand over hand)

    Light clean and pick up in her bedroom, bathroom and family room.

    Bike Ride or walk.

    Dinner and Relax with TV

    Tuesday:

    Water /Shaving Cream Play / or bake something (to take to friends at library and our favorite waitress’)

    Relax and Lunch at home

    Library visit (volunteer and clean book jackets in children’s department—take your own Clorox wipes– hand over hand assistance needed)

    Return and pick new  - library books  / Alternate weeks with ACTION CLUB

    Taco Tuesday  Dinner at Bone Island

    Wednesday:

    AM– David’s Promise

    Out to Lunch with a friend from David's Promise at Alpha Coney

    Go to the mall with an agenda...that could be  smell lots of things like candles, lotions etc or find all things furry and touch them!

    Check checking account balances, gas in car and car service needs.

    Home to relax—fingernail and toenail polish touchup!

    Thursday:

    Therapy  (walk, bike ride or music etc)

    Grocery store, home and put away

    Pick up lunch to take home or eat out

    Clean Bath, bedroom and family room (hand over hand assist)

    Laundry

    Friday:

    YMCA to Swim (shower)

    Bake and package  (something to take to your friends!)

    Meet Friends for Dinner or 2 for 1 appetizers at Applebee’s

    Attend a sporting event  BB at High School or Soccer at SAU or 1 time a month  go to Civitan Dance 

    Saturday:

    Plan to do something in town, a concert, play,  festival etc.

    Go to park to swing, walk and have ice cream

    Hang at home watch TV movie.

    Sunday:

    Church

    Lunch out or at church

    Hang with Family!

     

    It is so important  for us to have  the “regular places”  that we visit. 

    We can strengthen our circle of friends. EX:   Sally goes to the library every Tuesday and sees her friends Mary and June who work there. She cleans book jackets to volunteer. Mary and June talk to her, ask about her week and become her friends.  Sally goes to Taco Tuesday at Bone Island Grill - as do lots of other people - who after time, are stopping by to say hello to her. Her favorite    waitress expects to see them.  She tells her family about Sally, soon people are stopping her at the mall and store to say “hi” to her. 

    We have met new friends at sporting events or festivals that have eventually become a part of our caregiver team.  Especially              students– they see Sally out and want to be a part of doing that with her.   One time we went to a graduation event at Spring Arbor University and no fewer than 12 kids came to see her and talk to her… I only knew 2 of them—they all knew Sally! 

    Her community is broadening daily, and we are building a “new bottom (foundation)” to the one we thought would “fall out”!

     


  • 30 May 2018 11:12 AM | Lora Bigcraft (Administrator)

    By: Brian Elliott

    Time.  Time is a funny thing.  A second now is the same as a second tomorrow, yesterday, in the future, or year’s back.  Same can be said for hours, years, decades, centuries, etc.  Time will not slowdown nor speed up, and no matter how much we plead we cannot stop or go back in time.  All of us have something we wish we could go back and do-over or undo in our lives, probably several in fact.  We don’t get the luxury of going back for re-do’s in our lives, no matter what happened time will go forward.  Time never stops.  Not for one second.  One thing is for certain as time keeps moving, there are lessons that can be learned.  Some lessons only take once while others take longer to learn, hence “Should’ve learned the first time”.   That is the catch.  How do we know what the lessons are and what do we do with these lessons?  I think we should share them.  No matter how big or small.  A little extra education never hurts and it is these life lessons that will make an impact.

    As parents and schools are about to release the young out into the wild for a few months there will undoubtedly be lessons to learn and share. Sometimes there is nothing that can be done to ward off bad outcomes, no matter how much prep, precautions, and skill are involved. Unfortunately this is life and we don't always get what we want. I know that I never wanted to become a quadriplegic. Honestly never even crossed my mind as a possibility, didn't even know what it meant. Let alone, that it would be the result of my own actions and from such an ordinary and innocent activity. I was just going to hang out with my friends after work. "See you later Dad, be back sometime later tonight". How was I to know I wouldn't and couldn't go home again for months?



    July 27th or 28th, 2005 I began working on some of those lessons.  I say the 27th or 28th because I honestly didn’t know what day it was, or even where I was. Only things I knew were that I couldn’t speak loud enough to be heard and I couldn’t turn to look over and see my family sitting beside me.  The last day I almost fully remembered was Friday, July 20th and I was hanging out with three of my friends on a pontoon boat having a few drinks before heading back to a party in Tecumseh.  Now I was laying on a hospital bed and couldn’t speak because I had a tube down my throat.  I couldn’t even turn my head because I had a cervical spine brace aka “Halo” on.  Not to mention that I couldn’t move my legs, arms, or torso.  In fact, I could no longer feel any of those parts of my body if someone touched me.  Sometime during that Friday evening July 20th, 2005 I took my last steps.  Even though I don’t remember it, I know those last steps were right before I dove off of the pontoon boat.  Right before I hit my head on the lake bottom, crushing cervical vertebrae and severing my spinal cord in my neck.  From that moment July 20th until the 27/28th I still only have flashes of memory, a few moments of time here and there.  Time had basically disappeared for me.  However, it steadily ticked for all those around me and the lessons were stacking up.  

    Immediately after and in the time since, there have been many lessons that can be taken away from my experience and I am passing just one very simple lesson on to you.  A lesson I have shared with others and will continue to share.  However, I ask in return you remember my story, my lesson, and share it with people.  Here is the lesson, plain and simple.  Think First, Feet First.  I want that to sink in, just like I sank in the water before being pulled up off the bottom.  Think First, Feet First.  Anytime you or others enter any body of water for the first time.  Please, please, please enter the water with your feet first instead of diving.  Yes that means even jumping off of your own docks, boats, swings, etc. in places you have been all your life. Lake bottoms shift and change with tides, tree limbs and logs float around lurking under the surface.  If the worst that happens is that somebody breaks an ankle, I’ll take it.  Trust me you’ll be thankful when considering the alternatives that could have happened. 

    We never know what the future has in store for us. Especially any younger people out there. You aren't as invincible and indestructible as you think/feel. Trust me.  Think First, Feet First!  As a reference, the human spinal cord has a consistency similar to Jell-O.  That is how sensitive your body's information highway is, doesn't take much to nic or damage something as delicate as Jell-O.  Spinal Cord Injury (SCI) Information Pages reports there are at least 11,000 new SCI’s each year and 82% of those are to males.  Ages 16-30 are the highest per capita for SCI, where about 56% of SCI occur.  I fell into each of those stats, I was a 20 year old guy when I had my diving accident.  During my 3+ months of inpatient rehab at U of M in 2005 there were six people with SCI’s.  5 male and 1 female, out of the 5 males, 4 of us were in our 20’s and all 4 of our SCI’s were a result of shallow water.  Statistics don’t lie and time waits for no one.  Make the best of your time and the lessons that come along the way.  While you get ready for summer activities, please remember and take my lesson:  Think First, Feet First!




  • 14 May 2015 2:55 PM | Lora Bigcraft (Administrator)

     

    Michigan to Celebrate 25th Anniversary of the American with Disabilities Act

    Dynamic Abilities Blog 4-15 By: Parrish L. Stahl

    The ADA is nearing its 25th birthday.  It was signed by President George H.W. Bush on July 26, 1990.  It is largely a civil rights law that prohibits discrimination on the basis of physical or mental disability; similar in some aspects to the Civil Rights Law of 1964, which made discrimination based on race, religion, sex, national origin, and other characteristics illegal.  It specifically addresses accessibility requirements of public accommodations and reasonable accommodations in employment.

    Nationwide and state celebrations are planned this summer. There is a major event happening at the Lansing, Michigan State Capital steps slated for September 17, 2015. The public is invited.  It is undeniable that the Americans with Disabilities Act of 1990 changed lives. 

    The Department of Justice has announced that people who wish to file ADA complaints can now do that completely electronically.  The person needs to visit www.ADA.gov to fill out the new electronic form.  After the complaint is received the complainant gets a reference number that is then used to track action on the submission. 

    After March 15, 2015 e-mail complaints are no longer accepted.  People are still able to handle the process through traditional United States Mail by calling the ADA Information Line at: 1-800-514-0301 (V) 1-800-514-0383 (TTY) and requesting a paper form.

    It would be interesting to hear your comments on how it has impacted your life or someone you love. In your opinion, what do you see as the ADA’s successes or failures?   Where is there more work to do regarding accessibility both locally and nationwide? For this author, it is frustrating that we have gotten things like pool lifts at public pools and the equipment often sits unused either due to lack of use or knowledge on how to run them.   For any civil rights legislation to maintain lasting change our voices must continue to advocate and be heard.

  • 22 Dec 2014 10:19 AM | Lora Bigcraft (Administrator)

     

    Temporary Obstacles Can be as Frustrating as Permanent Ones

    By: Parrish L. Stahl

    Holidays and crowds are part of life, especially at Christmas time, but do you realize how often the bell ringer and their bucket or that service clubs nut sales display park themselves in the middle of an access isle? But it is only temporary, Right?  Think about it every month presents special occasions that make life and mobility hard for those of us that need accessibility.  As soon as late January those Valentine’s Day displays go up in retail stores.  For a person using a mobility device, it means far too often, that isles that were beautifully designed to incorporate accessibility are invaded by temporary holiday displays.  It is usually only a few inches and when questioned well-meaning workers say, “it is only temporary”. 

    The problem is March is St. Patrick’s Day, then Easter, Memorial Day, Mother’s & Father’s Day and those fireworks on every checkout celebrating Independence Day.   Oh, and then Labor Day and the big back to school push that fills end caps and isles with backpacks and cardboard boxes full of notebook paper and other supplies.  Finally, Halloween rings in fall with ghosts and monsters everywhere with literally tons of extra sweets crowding isles. 

    It is much easier to accept that an eighty year old building has steps and is inaccessible than it is to know an access route is being blocked by a shopping cart because that is a convenient spot for a cashier to put returns.  Her explanation, “it is only temporary, until I find time to put these returns back”.  Recently at a craft show a portable ATM was parked in the middle of a sidewalk only for the day.  When a picture was shared with the financial institution they made a commitment to not let this happen again.  

    Does anyone else have a hard time smiling and asking that things be moved?  Why am I so often embarrassed because I need to move something that after all, is only temporary? One could argue, so is the motorcycle parked in my access isle, the choir risers set up in circulation space, the garbage can that traps me in a bathroom, the pallets, of salt, mulch and soil and other items that change with the seasons, like bicycles, garden tractors and swing sets.   Does it make these obstacles any less of a problem because they change?  Education and the public’s understanding is the key to real change.

  • 11 Aug 2014 3:32 PM | Lora Bigcraft (Administrator)

    Striving Toward Accessibly for All Means People Need to be Seen & Heard

    By: Parrish L. Stahl

    Recently disAbility Connections launched the “Striving towards Access for All” project.  The first ever recognition was given to the newly renovated Meijer Branch of the Jackson District Library.  It is beautiful in its architecture and simplistic approach to accessibility.  The design is a testament to how seamless accessibility can be incorporated when included in an initial design.  In fact, the facility received a perfect score on the four priorities spelled out by the project, which are:  Parking and Approach, Entrance, Circulation and/or Seating & Restroom.  Perfect scores won’t be common.  Our world is full of obstacles and barriers, but does anyone else want to focus on the positive side of accessibility as we approach the 25th anniversary of the Americans with Disabilities Act?

    There are places in this community and others that won’t be accessible for years, if ever.  The answer is public pressure and positive voices.  If an entity is not accessible, should not someone ask why?  Polite phone calls and letters often can be powerful.  Does not it make sense to engage businesses and organizations in a dialog as opposed to threatening legal action?  Often changes happen because someone had the good sense to point out a problem in a reasonable way.   Michigan has natural wonders that are in our back yard; public access lake docks and parks are all around and have a long ways to go to be accessible.   Some areas like, Michigan Center, the Irish Hills and the City of Jackson have made strides, but if you love the natural world in the City or outlying communities your voice and actions is the quickest avenue to change.

    One of the simplest, easiest ways you can increase accessibility in any community is to be seen and heard when using accessibility features that already exist;  meaning if you or a family member appreciates something tell a manager in writing if possible.  Just a short thank you note often is extremely powerful.   Another important action is to use what is there.  If a swimming pool has a lift for example, use it!  Often things like pool lifts sit unused and thus are not priorities for overworked staff.   The more people that use and request accessibility design elements the more indispensable they become to the whole community.  Will not real change happen when entities realize the positive economic impact of being accessible?

  • 14 May 2014 4:46 PM | Lora Bigcraft (Administrator)

    Is Instant Technology Destroying Manners?

    By: Parrish L. Stahl

    Has anyone else’s daily routine been altered significantly by the continual presence of ever increasing technology?  Countless people delay key parts of their morning activities like, the bathroom, breakfast and even avoid conversations with people they live with in favor of checking to see how many likes and comments their bedtime nugget of knowledge produced.  Devices like smart phones, pads, cameras and voice recorders are everywhere.  It is so frustrating sometimes when we have an emotional need for a real interaction with another human being and that person, whether it is a loved one or someone providing a service, seems to be totally or partially preoccupied with a piece of information that by all appearances is more important than you are at that moment .  If you were lucky enough to be raised by people with manners the way generally reasonable people are acting is troubling.

    Remember a time when it was expected that when you meet another person whether for the first time or someone you have known for a period or maybe even your whole life, that a genuine greeting would almost always take place?  Those greetings most of us learn as very young children.  Eye contact, a smile, a hug, a handshake or maybe asking someone how they are, and giving them your full attention as they answer you are getting more rare every day.   Not everyone is comfortable with physical contact and that is really alright but paying attention to another person and giving off real cues that you are listening is a key life skill.

    One trait of successful people is that they tend to be greatly in tuned to the people around them.   There is a time and a place for technology.   The tools technology gives us can help make our lives full and balanced, but only if we work at that balance.  The days of having one employer for 40 years, for instance, are gone.  It will probably be necessary to have a portfolio of jobs.  Few will be hired because of their texting abilities.  Employers love to hire individuals with great interpersonal skills.  Development and maintenance of those skills takes practice throughout the lifespan.  As we live longer lives communicating effectively with care givers is something every family will face.

    Social media, technology and instant access have opened a tremendous number of doors for all people including people with mobility challenges.  Use those tools responsibly and remember to reach out to people in the real world in a polite way.  We do not have to quit cold turkey, but start somewhere.  Do you really need the day’s fifteenth selfie?  Turn off the phone at mealtime and carry on a conversation.  The most powerful tool we have is learning to genuinely care about and interact with each other.

  • 20 Mar 2014 3:32 PM | Lora Bigcraft (Administrator)

    One Movements Success is a Victory for All Others

    By: Parrish L. Stahl

    With Black History Month behind us and Women’s History Month ongoing we are surrounded by reminders of the sacrifices made by individuals in both movements.  All civil rights movements have some things in common like passion, conviction and a strong burning desire to change society for the better.  It is interesting if we look back in history we see how different movement untimely are intertwined because of their common goals of human respect, a level playing field and opportunities to excel and build a better future.

    All individual movements that are successful spent time educating people about their situations.   Reaching out to open-minded potential allies, slowly but surely eased people’s fears and that is how we build momentum in any movement.  It is true people fear what they do not understand.

    Martin Luther King stepped through a door that Frederick Douglas cracked open.  Some individuals are heroes in multiple areas.  Helen Keller worked for woman’s equality and the rights of people with disabilities.  Ed Roberts, who many consider the father of the Independent living movement, needed curb cuts and an iron lung to attend Berkley in the late 1960’s.  That advocacy and his leadership led to hundreds of Centers for Independent Living all over the world. 

    Jackie Robinson was the first African America to play in the majors, but his struggles were the catalysts for all sports to be opened.  Do not players from Japan, Latin America and the rest of the world still owe him a debt?  In the news right now openly Gay players in multiple sports are being signed with celebration by the vast majority.  The most talked about aspect is how can they help the teams?    What a proud time to be a sports fan. 

    The Tuskegee airman proved that an African American could be among the best fliers in the world.  Every pilot that was different from the norm that was hired in the decades that followed should be in there debt.  History proves that fair societies eventually get around to doing the right thing.  America and our community have more to do; how fast things evolve is up to you.  Be proud if you believe in fairness because you’re on the right side of history.

  • 22 Jan 2014 4:21 PM | Lora Bigcraft (Administrator)

    Fill Yourself with the Spirit of Giving When People Really Need Help

    By: Parrish L. Stahl

    Now that most of our holiday decorations are packed away in attics,

    basements, crawl spaces or in the back of that already overloaded, used to

     be, walk- in- closet; most of us settle back into our daily routines.  The charitable feelings so prevalent during the last part of the year give way to

     the stress of leftover holiday bills and the almost inevitable shortage of resources most households experience after the celebrations are over.

    Having extra people over is a joyous part of the holiday season, but having additional bodies around forces stretched budgets to come close to the breaking point.  Extra months to feed, gifts and use of additional household supplies are all realities that families face.

    Does it not seem strange that efforts to help each other tend to diminish

     when we need each other the most?  Do you know a person or a family that could use some help?  One of the most noble of New Year’s resolutions is to

     do what we can when we can to help others. 

    Organizations that help people can always use supplies and household items; if your family has a windfall pass the items on.  If your Mom gets you that deodorant you hate or Aunt Mary provides you with perfectly good

     aftershave that you happen to be allergic to, these well-meaning gifts

     have the potential to help those in need.

    Many churches and non-profits collect items we all use all year long.  Ask around and you may be able to have a major positive effect on families that need your help.  Let’s face it, giving feels good no matter when it happens.

  • 01 Nov 2013 9:25 AM | Lora Bigcraft (Administrator)

    Remembering Who Our Allies Are

    By: Parrish L. Stahl

    One of the greatest moments in life is discovering where your passion lies.  Some of us are lucky and find out when we are extremely young.  Such is the case when someone knows they want to work with animals for instance. 

    There are always questions to ask ourselves.  Like, will this be a hobby, a

    career or both?  What steps will it take to set up and eventually reach goals? 

     Sometimes life happens and we end up working outside our passions until

    we are much older.  This might be someone who has always had an artistic talent but waits until they are long retired to fully explore that side of themselves.  Life is a timeline with many stops and starts along the way.  Whatever part of the timeline you are on, one thing is certain; you will need friends and allies.  Part of the beauty of being human is that journeys differ

    and vary, but most of us want desperately to help each other.

    Does it really matter at what stage we truly learn to love and understand how powerful our personal passions are?  Do not we sometimes put up our own barriers?  Far too often we hear healthy people with many decades of active

    life in front of them say, If I were younger, stronger, smarter, thinner and the list goes on….. Do you ever wonder why we spend so much of our lives trying

     to talk ourselves out of things?  Fear is a normal thing, but man, it is a lousy motivator. 

    One advantage of being a little older is that it is much easier to understand what and who you need to reach goals.  Almost everyone has access to

    endless information.  Experience teaches us that allies can be a filter for

    sifting out what you really need. Why are public entities like libraries, non-profits & museums busier than ever?  Could it be among the many reasons

     that people are eager to explore their options in life? 

    If you are exploring and looking for reasons why you can reach for a goal, remember to get some help.  There are people that are charged with and

     make a career out of helping other people reach for goals. 

    So often we hear I do not have any help.  That is not necessarily so.  Everyone has help out there.  Sometimes people need assistance learning how to seek help out.  When people learn to come together and within the imperfect systems we have to work with; they do extraordinary things.  Chances are

    you have numerous allies in this world that you have never imagined are in

    your corner.  Negative energy breeds negativity.  Positive energy on the

    other hand is infectious and spreads through your life like a cleansing wildfire.

    If you are planning the next stage of your life, it makes sense to make goal number one to have a positive attitude.  Next list who your allies are; you

    may be pleasantly surprised.

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